Here is the channel 4 News story in case you missed it!
And here is a link to the radio interview Allen did this morning with the Phillips and Company morning show on Y 98.1 fm!
Wednesday, April 28, 2010
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About Me
- Allen & Andrea
- My name is Allen Baumgartner. In 2008 I was diagnosed with Friedreich's Ataxia, sometimes referred to as the unknown disease. Friedreich's Ataxia is a type of Spinocerebellar Ataxia, a rare and progressive neurological disease that affects the muscle and heart. It causes degeneration of the spine and cerebellum that results in loss of coordination of muscle movements (ataxia) and other symptoms. Over the course of about a year, I went from having an unusual gait (ie, walk) to a cane to a wheelchair. It was right at this same time that I moved into the wheelchair that I finally received a diagnosis of Friedreich's Ataxia. When I was diagnosed, I asked myself one question: stop or go? I chose go. Soon after, I made the decision to ride across country from St. Louis, Missouri using an arm-powered bike called a hand cycle, to raise awareness for my disease. You can find out more about my trip at my website: www.FromHereToThere2010.com
Glad Buddy and Xavier could make it! Wish I was able to make it.
ReplyDeleteWe wish you the best of luck on your trip!
Amanda